Kallmann Syndrome and the closely related hypogonadotrophic hypogonadism are genetic conditions.

However unlike a lot of other genetic conditions its route cause is still not fully understood.

At present there are 4 different genes that are known to cause this condition, and there may well be more out there. It has been estimated that these 4 genes only account for about 30% of all cases.

The lack of complete understanding of the genetic cause of Kallmann Syndrome prevents an effective, reliable screening test from being developed.

If any person with Kallmann Syndrome is going through fertility treatment they should be aware that there is a chance of passing the condition on but it is impossible to give an assessment of the risk.